Jimmy Pfeiffer Dragonmeyer is a children’s book my mom started working on last year. The birth of Jameson and the introduction of Pfeiffer syndrome to our family has been a profound experience. Just as any child does, Jameson has already given us so much in such a short amount of time. And as a parent I wonder if I’ll ever be able to give him what he has given to me. Words cannot express my appreciation and gratitude to my mom for writing this book for him. The gesture itself is embracing, but the end product is truly magnificant and beautifully done!
We have learned so much about Pfeiffer syndrome because of Jameson, and our worlds have really opened up because of it. If you would’ve asked me two years ago about Pfeiffer syndrome I would’ve stared blankly at you! We are very grateful to everyone we have met on our journey and to those that have embraced us with open arms. We share a love and respect for the cranio community like no other! We thought it was only fitting as we venture forward with this non-profit organization that Jimmy Pfeiffer Dragonmeyer be our representation. He represents Jameson, our journey, and the lives of so many others.
The universal story of the book is that despite our appearance on the outside we are all alike on the inside, and with a little love, determination, and guidance you can grow up to be anything and anyone you want to be! Our goal is to create more books featuring new cranio characters and their journey. If you are interested in being a part of our story please send us an email at firstname.lastname@example.org.
We hope this book helps to share a little knowledge and understanding about Pfeiffer syndrome. We are currently mailing copies to cranio-groups, doctors, and anyone at all interested in the book! A portion of the proceeds made will be given to an educational fund for Pfeiffer syndrome.