Here he is, our new trach baby.
Day 1 is pretty much in the books.
Other than a delay in surgery time everything today has gone very smoothly; and I am so, so grateful for that. As I type this I am sitting next to Jameson quietly resting in the PICU.
In silence. No snoring, no struggling. Just a peaceful, rhythmic rise and fall of his chest.
Silence. It’s pretty surreal. (The drugs are helping with that a little too ;))
We got up very early this morning to head up to Dallas, and I offered Jameson something to drink multiple times, but it was so early he didn’t want anything. That came back to bite him in the butt. When we got here at 9:30, an hour past liquid cutoff time the first thing he asked for was water. And of course, he was pretty upset when he couldn’t have any.
We had the same discussion/argument/tantrum over water about 100 more times since we ended up waiting 4 hours for him to go back into surgery. The first case of the day took a lot longer than expected so everyone got pushed back, which isn’t a big deal unless you haven’t eaten or drank anything in over 12 hours. He hadn’t had anything since 9:00pm the night before, so the poor boy was definitely parched. You should have seen him when the nurse gave him a few mL’s of Versed; he sucked it down like a desert in the rain, lol. From that point on I’ve had bone drugged up little boy :/
After the Versed they rolled him back to the OR, and the whole procedure took about an hour all together. My stomach had started doing flips the second they rolled him away. I have been much more anxious with this surgery than either of his cranial vaults, so I was grateful for how quickly the procedure was.
The doctor said everything in surgery went well, no issues, no surprises. Which is always good to hear.
He’s tried to pull his off his vent three times now, so they are keeping him pretty heavily sedated to protect his airway. Hopefully, the vent will go away tomorrow (fingers crossed). After that, the next big milestone is his first trach change, which will be around day 7…So, until then, it’s just a day to day healing process. I keep looking at the trach site, as if I’m healing it by staring at it, lol. Really tho, it’s hard to take my eyes off of it – Jameson has a trach now, that is surreal to me as well.
Jameson has a trach. It’s almost a little weird to say I keep repeating it. It’s just so new, it’s not the norm on him yet. And I’m an RT so I’m all up in it, lol. I don’t get hands on with pedi trachs and they’re a little different than adult so I’m definitely curious about every little detail. But the trach site looks great so far.
Thank you for keeping us in your positive thoughts, and prayers. We appreciate it. Today went well, and I hope the next two weeks go just as smoothly.
Also, please say a little prayer for my husband and other two boys. I can only imagine the bachelor pad that I’ll be returning to, lol.
Good night from Dallas, I’ll talk to you all tomorrow.
Some shots from pre-op. We tried to stay busy..
First things first. He took one look at the surgical gown and threw it on the floor. Wasn’t feeling it today.
Went for a car ride.
Made some important phone calls to China.
Made a sandwich we couldn’t eat
And we tried to craft the next Lego Ninja