ABR (Auditory Brainstem Response) Test

After an 8 long months of trying to get an ABR scheduled, Jameson finally had his appointment today.  What they say is true, you really gotta keep fighting for these kids because no one else is going to.  All of the doctors have been great, don’t get me wrong, but when one little mistake happens in the system with referrals the process has to start all over again, and if you don’t initiate the process no one else will.

What we have known for quite some time has finally been confirmed – Jameson has moderate hearing loss in both ears, the left is a little worse than the right.  He has trouble picking up low and middle tones in his right ear and does okay with the high ones, and in his left he has trouble with the low and high tones, and picks up just a little of the mid-tones.  The doctor did say his hearing loss is conductive, which is common with these kids.  So, hearing aids are next!

And yes, I am excited about this!  I have high hopes that with some assistance Jameson’s brain will start to clearly hear the world around him.  He communicates with signs and gestures, and clearly knows what is going on around him, and with added sound his world will just brighten!  And since we have already been doing speech therapy I really hope he becomes a chatterbox!

We started off in a great mood :)
We started off in a great mood 🙂
Then had fun with the nurse call button )
Then had fun with the nurse call button )
And then had a TT when I took it away :)
And then had a TT when I took it away 🙂
Back home - still loopy and heavy headed from the sedation
Back home – still loopy and heavy headed from the sedation

5 thoughts on “ABR (Auditory Brainstem Response) Test

  1. Been awhile since I visited… he’s grown! Wow! We too are going to be having an ABR; trying to coordinate it with the cranio appt since we’ve moved across the country and travel nearly 5 hours for specialists. We failed the sound booth test to the point of needing hearing aids, but I’m holding out hope she just wasn’t interested in the beeps. The usual in-ear tests weren’t happening with this two year old! Glad you got some answers and can move on to helping him!

  2. I just discovered this handsome little man through a Facebook share tonight. I love your words and the emotion behind your stories. I chose to comment on this post because I have a 2 year old with delays and the ABR has been suggested but doctors cannot agree that he needs it. What exactly can an ABR tell you? My little guy has tubes, as well.

    Thank you for sharing… And I really enjoyed your post: “He’s not scary… He’s just a little boy.” 🙂

  3. Your son is gorgeous little boy and very resilient. I know that my family has gone through a lot of stuff medically with my little sis. I definitely understand the worry and concern. But from the photos and your stories he is a normal little boy. I hope he is doing well.

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